Zebra's Child

Living With Common Variable Immune Deficiency and It's Autoimmune Friends

Category: Embodiment

Beginnings

fullsizeoutput_8c0

Image: Zebras Child 2019

For the first few months after my husband’s death, I could think of nothing other than the loss of him. It invaded both my waking and my sleeping and was intensified by the bone deep exhaustion that permeated every cell of my body. But gradually, over the months, I started to notice that there began to be room for other things. I began to be able to eat with friends and stay still long enough to observe the fog slowly retreating up the hills in the mornings. It’s not that I hadn’t seen the color of the world in the early months of grieving, it’s that the color and beauty were merely observed rather than taken in. Somewhere around the seventh month since the fall that took the essence of him away, which was also the fifth month after his death, I began to notice that every once in awhile I would feel a flash of joy. I didn’t quite know what to do with that. Should I feel guilty that I was beginning to feel comfortable in the world again or be grateful for it?

Schubert Bliss

Almost 7 months to the day since my husband died, I am finding ┬áthat a sense of peace often settles over me. I’m not saying that there is not still grief, or that I don’t still miss him. There is, and I still do. But I am finding that as time goes by, I am remembering more and more often our many decades together when he was not sick, and remembering less the awfulness of the illnesses that preceded his dying.

Last night I went with two friends to a small concert venue to hear an evening of music written by Schubert. As an Austrian composer of the late 18th and early 19th century, he was unusual in that he not only composed music for small and large orchestra, but also wrote transcendently beautiful art songs for voice. Saturday was an evening of both.

I am fortunate. Much of music speaks directly to my soul. It bypasses my analytical brain and goes straight to my heart and fills me with a sense of peace and beauty. Sometimes it feels as if the music inhabits me and I sense little boundary between me and it.

Such was last night, and I realized, not for the first time, that the intense grief of my husband’s death has continued to lessen, giving me space to exist in the world. Such is the grace of time, I think, and love. As I sat there fully present in the music, I realized that this is exactly what he would want for me. He would not want me to stop living after his death, but rather fully embrace life for the both of us.