by Hannah the Zebra
I used to resent the days after an infusion because I can rarely do anything for a day or two. I also used to feel extremely ill for 2-3 days afterwards. That second part has dramatically changed for the better. It probably took 4 – 4 ½ years of the doctors experimenting with various pre-infusion meds until they got a combination that really works. Now, while I still have some side effects, they are under control, and while I may not be full of vim and vigor the day after an infusion, I at least am no longer curled up in a ball of misery. So, for the most part, I have learned to look at the day or two after an infusion as Days of Rest. It gives me a legitimate excuse to do nothing. Today I slept late, got up and got breakfast, turned on the radio to my favorite classical station and listened to music while I sat in a chair and stared at two different choices of material for curtains. Then I went back to bed for awhile. I then got up, ate lunch, and then had an acupuncture appointment. Now I will eat dinner, and, due to the fact that my infusions were on unusual days this time, then go to rehearsal. And then I will come home and go back to bed and sleep until morning. I’m super tired, but other than that, I’m fine. Not a bad day, come to think of it, for the day after an infusion.
PS The going to rehearsal part was overly optimistic. Just dinner and then bed. Still not bad.