I used to resent the days after an infusion because I can rarely do anything for a day or two. I also used to feel extremely ill for 2-3 days afterwards. That second part has dramatically changed for the better. It probably took 4 – 4 ½ years of the doctors experimenting with various pre-infusion meds until they got a combination that really works. Now, while I still have some side effects, they are under control, and while I may not be full of vim and vigor the day after an infusion, I at least am no longer curled up in a ball of misery. So, for the most part, I have learned to look at the day or two after an infusion as Days of Rest. It gives me a legitimate excuse to do nothing. Today I slept late, got up and got breakfast, turned on the radio to my favorite classical station and listened to music while I sat in a chair and stared at two different choices of material for curtains. Then I went back to bed for awhile. I then got up, ate lunch, and then had an acupuncture appointment. Now I will eat dinner, and, due to the fact that my infusions were on unusual days this time, then go to rehearsal. And then I will come home and go back to bed and sleep until morning. I’m super tired, but other than that, I’m fine. Not a bad day, come to think of it, for the day after an infusion.
PS The going to rehearsal part was overly optimistic. Just dinner and then bed. Still not bad.
Zebra's Child 