Minor Car Accident

Hi Guys,

I was in a minor car accident on April 20th. For a few days I felt fine. I kept telling everyone, “I’m fine. Really. Thanks, but fine.” Well that was true for a little less than  week, and then everything started to hurt. The mild bouncing around caused my fibromyalgia to flare up, and re-triggered my intractable migraines. I was doing so well. And I had gotten my once-every-three-months lydocaine shots in my head literally 24 hours before the accident. My head had been blessedly numb.

But a week after the accident, when the re-triggered migraine was not responding to the prescribed  combination of migraine meds and pain killers, I went to the ER.  Many hours later, after a cocktail  of IV meds which did little, I was given 1mg of a very potent narcotic in my IV line. That helped a lot. And broke the cycle of the intense pain. At least the pain that returned several hours later was 2  points lower on the 10 point pain scale that it had been when I went in.

So. I’m still not back to normal and I have infusions for the next day and a half. (Counting from Wednesday night.) This is the best that I have for now. I’ll post more when I can.

Take care.

2 thoughts on “Minor Car Accident”

  1. Greetings, I am so glad that I found your website. Thank you for everything that you have posted. You give me hope. I have not had hope for almost 5 yrs. I hope your doing well after your car accident. I am 52 years old & have CVID. Countless hospital infections, Sepsis blood infections you name it. I have no quality of life. It’s effecting me mentally. I have been on SubQ treatments; vivaglobin first then switched to Hizentra for 4 1/2 yrs. I also mourn the loss ot my health, my identity, teaching. I had to retire after almost 28 yrs of work due to CVID. I had to turn down a new job teaching which is what I have wanted to do since I was 6 years old. I mourn the fact that I will never accomplish my dreams or goals due to CVID and worry that my son may have inherited it. I no longer do many of the things that I enjoyed. I was thinking of returning to college and that’s not an option either. I get very depressed full of despair and am unconsolable most of the time. I live in fear of getting side effects from plasma. Any wisdom and coping skills you could post I would greatly appreciate. Doctors, Counslors, my husband and family members lack understanding and compassion. I am alone in living this way I feel like I am going insane and will stay insane from fear of possible side effects of plasma treatments but want to stay healthy from the treatments. The treatments are a two edged sword for me. I wish I was never born at all then to live with CVID,.

    1. Hi Mary,

      First let me put in the disclaimer that I am not a qualified therapist/counselor, or anything of the like; I speak only from my own experience.

      I am so sorry that you are having such a difficult time. The first years were very difficult for me as well. I am fortunate to have a very supportive family, which has helped enormously. But no one other than a fellow immune deficient person can truly understand what it is like living with a Primary Immune Deficiency.

      That being said, there are other medical conditions that have similar psychological effects: cancer, MS, advanced diabetes, amputations, sudden paralysis. None of them are exactly the same as each other, but all involve a profound readjustment to one’s concept of self and and what one can no longer do. One option for you might be to check out support groups for these, or similar conditions, contact the leader of the group and ask if you could join, even though your diagnosis is not a perfect match. Knowing that there are others with similar struggles has helped me immensely. You also might ask the leaders of these groups if they know of a good therapist or counselor who is experienced in working with people with serious illnesses.

      I don’t know if you are a member of a faith community, but if you are, you might try to find a pastor/priest/rabbi/imam who is comfortable talking about fears involving death. Believe it or not, may of them aren’t, and offer pat and unhelpful glib replies. If you find someone unhelpful, move on and keep looking. Sometimes the starting place may be the chaplains associated with a hospital.

      Once you find someone good, be it therapist, chaplain, or support group, please know that this is not a quick or easy process. No one can wave a magic wand and make it all better. (I wish!) But each time I am hospitalized, I face my own death (which of course is inevitable), more squarely and comfortably. It took a lot of phone interviews,( which I had to do slowly), but I have been fortunate in finally finding a spiritual director who is a great match for me. Part of the reason is that she is a 2 time breast cancer survivor, but of course that isn’t necessary. As I talked and worked on the idea that I might die sooner than I would wish, I found that I was no longer afraid of it. Sad? Yes. But no longer terrified. And once I reached that state, I found I had a lot more energy to devote to doing a few small things, and trying to stay as healthy as I can. I might die relatively soon, but with treatment I might also live into my 80’s. I met a gamma globulin patient on the infusion unit a few weeks ago who has been getting infusions for 18 years!! And he is doing reasonably well. That changed my perspective!

      You have every right to be angry at your condition. It is not only normal, but healthy, since anger can drive you to action. In this case, action might be finding some support.

      I hope some of this has been helpful. Take what is, and throw out what is not. There is no prescription here: what works for me might not work at all for you and visa versa. But I would encourage you to start on the path and discover some things that help. And know that it will take awhile. Celebrate each step, no matter how small.

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